LAPSE:2019.1072
Published Article
LAPSE:2019.1072
Key Points for an Ethical Evaluation of Healthcare Big Data
September 30, 2019
Background: The article studies specific ethical issues arising from the use of big data in Life Sciences and Healthcare. Methods: Main consensus documents, other studies, and particular cases are analyzed. Results: New concepts that emerged in five key areas for the bioethical debate on big data and health are identified—the accuracy and validity of data and algorithms, questions related to transparency and confidentiality in the use of data; aspects that raise the coding or pseudonymization and the anonymization of data, and also problems derived from the possible individual or group identification; the new ways of obtaining consent for the transfer of personal data; the relationship between big data and the responsibility of professional decision; and the commitment of the Institutions and Public Administrations. Conclusions: Good practices in the management of big data related to Life Sciences and Healthcare depend on respect for the rights of individuals, the improvement that these practices can introduce in assistance to individual patients, the promotion of society’s health in general and the advancement of scientific knowledge.
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Keywords
big data and life sciences, biomedical ethics, confidentiality, consent forms, data protection, health administration and big data
Subject
Suggested Citation
Leon-Sanz P. Key Points for an Ethical Evaluation of Healthcare Big Data. (2019). LAPSE:2019.1072
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Journal Name
Processes
Volume
7
Issue
8
Article Number
E493
Year
2019
Publication Date
2019-08-01
Published Version
ISSN
2227-9717
Version Comments
Original Submission
Other Meta
PII: pr7080493, Publication Type: Journal Article
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Published Article
LAPSE:2019.1072
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doi:10.3390/pr7080493
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[v1] (Original Submission)
Sep 30, 2019
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Sep 30, 2019
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https://psecommunity.org/LAPSE:2019.1072
Original Submitter
Calvin Tsay
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